Edit: I just realized this is more a meme community, if this is not allowed please remove my question
My wife has ADHD, she was officially diagnosed. I never got tested but I would not at all be surprised if I have ADD or ADHD.
My son is almost 6 and I think it’s very possible he will develop ADHD.
At school he is the ony child that has his own little desk, because he gets very distracted working in a group.
At home he can completely get absorbed in something he does, like lego or watching tv. To the point where I have to turn the TV off to ask him a question (otherwise he just doesn’t respond at all). He forgets to eat or drink when we don’t ask him multiple times.
I would like to hear from people that have ADHD, what would you have liked your parents would have done when you where really young?
For example would you think it’s better to try to get a diagnose asap or would it be better to wait until he is older?
What other things could work to get daily things done? Like getting dressed without me having to ask 16 times.
I’m late to the thread, and I don’t have a meme handy to offset all of the other great responses…
I will point you towards Jessica McCabe and her book How to ADHD briefly noted here:
https://sh.itjust.works/comment/19118349
Following along through her real stories of her real life really resonated with me and my real life and so many similar experiences.
https://howtoadhd.com/ https://www.ted.com/talks/jessica_mccabe_this_is_what_it_s_really_like_to_live_with_adhd_sep_2017
Tldr: Start the diagnosis process now, diagnosis can help your kid access support and understand themselves better and it can take a long time to get diagnosed.
I’ve added some strategies that have helped me at the bottom of my reply.
(Sorry in advance that this is kind of all over the place, I wanted to respond but I’m not the best at organising thoughts.)
For context, I was diagnosed as Autistic as a child but not diagnosed with ADHD until I was as an adult. I’m not sure what country you’re from but I’m going to be talking about UK services here because that’s what I’m most familiar with.
I wish I were diagnosed and started on medication earlier because all my life my executive dysfunction was labelled as depression which led to years of being sent round mental health professionals and crisis services who didn’t understand why the antidepressants and cbt they were giving me wasn’t helping, but when I finally got diagnosed and started on meds after years of fighting for a diagnosis, I realised a lot of the issues I was having were actually related to ADHD, not depression. It would have saved a lot of time and trauma to get that ADHD diagnosis earlier.
Getting a diagnosis can unlock the chance to access more support in education, such as an EHCP or reasonable adjustments in class and exams. (Although, it’s often an uphill battle to get these even with a diagnosis)
Also, if your kid does get diagnosed with ADHD, take the time to talk to him about it. Someone I know who got diagnosed well into adulthood told me about how they felt alienated growing up because they were always perceived as weird and naughty but didn’t know why; but looking back once they knew they were neurodivergent, they realised it wasn’t their fault, and that closure was incredibly helpful and something they wish they knew earlier.
Also, if he does get diagnosed, don’t just medicate, also learn strategies for managing the many aspects of ADHD.
I don’t have many strategies for getting daily tasks done but a few I can think of off the top of my head which I find helpful are:
- Rewarding myself before I start (it sounds silly but it helps me with getting the dopamine I need to do to start the task)
- Setting timers and scheduling movement breaks when doing work at a desk (also, keeping that space out of the room you sleep in if possible)
- Putting on a playlist of music which is a specific length and using that as a timer
- Keeping food and water next to me when sitting at my desk so it’s easier to just grab a drink/eat without breaking hyperfocus and losing motivation
- Incorporating my current hyperfixations into more boring tasks to make them more interesting for my brain
- Keeping tomorrow’s clothes right by the bed so it doesn’t take much executive function to put them on in the morning. Same with keeping my bag packed with everything I need in advance.
Please get the diagnosis even if you plan to do absolutely nothing with it.
It opens doors
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Individual Education Plans
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Scholarships for additional services/materials even while attending primary school.
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Scholarships for College
I literally have a scholarship right now for my 5 yr old daughter. The scholarship covers speech therapy, occupational therapy, and I have left overs to purchase equipment like a pc for her use but I will likely put it into a 529 for her.
If she receives this scholarship for even a few years - her college will be all covered.
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about sums up my childhood and early teen years. get that kid early treatment.
Get diagnosed, and if applicable, treatment ASAP. In a very loose way, early intervention can “cure” ADHD.
Children’s brains have much higher levels of neuroplasticity, and can therefore “learn” and rewire their brains’ reward systems to be similar to those of neurotypicals. There is evidence that with early intervention and treatment, this is sufficient enough that children with ADHD can grow up into adults that are well functioning enough to no longer require as much treatment/medication, if at all.
Un-medicated adult with ADHD here.
Every case can be different.
First thing I wish I could have done:
find a therapist who specializes working with ADHD. they will help develop skills and coping mechanisms that will help them throughout the life; whether or not you decide to medicate.
Second thing:
Find them an active outlet, a high energy activity that requires focus. For me it was hockey, but I wish it was circus. Juggling helps me manage my ADHD more than anything.
Third: Help them develop routines in their life, when to eat lunch, how to get ready for bed, seems simple but it is the thing I struggle with most as an adult.
Finally I cannot stress the first point enough. Find a therapist that specializes in ADHD.
That is good advice. While ADHD can indirectly interfere with building a habit, it’s a different part of the brain, so habits can be built and maintained, and then they become effortless, as if the person had no ADHD. Good for everybody, but with ADHD, it’s harder to push through it with “discipline”.
I would have liked my parents to have been understanding of the fact that I had anywhere from serious difficulties up to and including inability, to do things they took for granted as necessary parts of life. Unfortunately they chose the methods of constantly yelling at me, belittling me, and being utterly dismissive and respectless.
That sucks! I honestly (as a father) can’t even imagine raising a kid like this, I definitely make mistakes, but try to support both my kids as much as I can.
I feel you and as a stepparent to an ADHD/autism kid, it will get extremely frustrating at times. Therapy might be necessary, it will help give you and your kid the skills to build…skills… to deal with things. Professionals are better at it than us. There are a lot of different ways ADHD/autism presents, and they all have different hurdles.
I highly recommend you start building habits now for the activities they struggle the most with and it is extremely important that you build self-care habits (taking breaks for water, food, shower, etc.), because if it doesn’t become a habit, it will become a struggle, and you will both struggle.
Its important to keep in mind that your kid will be struggling with happiness neurotransmitters. They’ll be searching for dopamine hits however they can, and it can lead to addictive habits that make things spiral and crash (videogames, foods, anything really)
Looking back as a man diagnosed at a much later age I definitely think my life would have been easier if I would have been diagnosed earlier in life. My parents simply never saw the signs, or actively ignored them. It was only when I wasn’t doing well in school that they intervened, and only to improve my academic performance. I guess they didn’t want to have a child with issues. I was yelled at by teachers for always being the last one to turn in my assignment, being too messy, etc. I didn’t have many friends, was bullied and basically always felt like an unwanted outsider as a kid.
I think I would have been better off having some help improving my coping strategies from a young age. I’m not saying your kid will face the same things that I did, but if it was me, I would have liked to have some help growing up.
I’m still a (very) high functioning adult right now, but it cost me a lot of effort, stress and time to get here – a lot more than the vast majority of my peers. I still have issues that most of them simply do not even have to think about.
Same. And I thought I was the only one. That I just sucked as a person. It wasn’t until age 45, and after reading posts like this one, that I found out others shared my experiences.
Looking back what would have helped more? Parents that understand and try to support you, teachers knowing your situation and maybe helping you more or medication?
All of that, but mostly something like CBT or another type of therapy to form healthy coping strategies.
- Get them officially diagnosed: start looking for an appointment now!
- Decide about treatment based on science. In most cases, I believe, medication has the better outcome over non-medication; occupational therapy possibly too at that age, psychotherapy later. But they can tell you what works for that specific case.
- Educate yourself and show compassion. Ask yourself “could this be purely neurological?” before getting angry or forcing something.
During the holidays, I observed my son medicated and unmedicated. I noticed how unmedicated, he gets into all sorts of annoyances to himself even when just playing a board game with me. It’s overall not as good of an experience for himself: He is distracted and makes worse decisions, gets my mood down by tripping over water or toppling stacks of cards etc. There are many little things that add up to worse experiences. Might have a hard time getting into whatever is trending in his class, be it sports teams or trading cards.
Diagnosed as an adult
My parents tried punishments and rewards to get me to do my homework. Neither worked. They never considered that I was telling the truth when I said “I can’t do that”. No matter how hard I tried, there were some simple things that I just couldn’t do. (I did get an apology as an adult when they finally had the missing information).
On the other hand, I was so good at the other subjects that I didn’t have to study or even try until I got to higher education, then I didn’t know how and failed badly.
Diagnosing early can help with getting access to medication later in life. Medication can be helpful with controlling focus, but be aware that children often don’t have the vocabulary to tell you that the medication has uncomfortable sides effects, so you’ll need to be aware of them (and consult a professional - not just a random internet person).
ADHD isn’t an attention deficit disorder, it’s an attention regulation disorder. Hyperfocus is just as common as a lack of focus, and it’s not possible to force a hyperfocus or even direct it on the correct task. It is possible to do a task that’s different from the current hyperfocus, but it takes a lot of energy.
Be aware of burnout, work with the ADHD not against it where possible, but keep in mind that sometimes things are just going to be difficult.
You seem to care, and know where to ask for help. You’ll do fine.
Edit: I would love to give you tips for how to get daily tasks done, but my partner still has to remind me to eat some days. If you ever find out, please let me know.
The doctor on YouTube channel HealthyGamerGG has a lot of good information and has recently written a book for parents.https://www.healthygamer.gg/how-to-raise-a-healthy-gamer
As a person who knew I had ADHD (inattentive) since middle school but didn’t get an official diagnosis and treatment until my late 30s, I would recommend exploring an official diagnosis and treatment. 2 reasons: 1) It might take you years to get a diagnosis and find an appropriate therapist. 2) I now look back and wonder if I could have done better in my life if I got treatment sooner.
Psychologists usually support early intervention. That allows the kid to immediately learn how to do things in the best way for them, instead of being forced to conform to a mold that does bot match them. If you can, an evaluation and follow up with a mental health professional would be beneficial. That would also allow the school to provide reasonable accommodation.
Also consider that having a diagnosis doesn’t mean you have to share the diagnosis with everyone (or anyone).
That last sentence is very good advice, I would like to get an official diagnosis and have some professional opinion whether he has it or not. My wife doesn’t want him to get a label and maybe other (worse) treatment from teachers or other adults.
But you are right you don’t have to share it with anyone.
Learn everything you can about ADHD. Figure out what traits be has doesn’t have.
Most importantly, discuss these things with him! Don’t let him grow up confused and having to figure all this out on his own. Don’t assume the school(s) will explain anything.
I was diagnosed at 8 and I was put on dexadrin, ritalin, concerta, and a homeopathic remedy. I built a resistance to 3 within months of starting them, and had to prove to my mom that homeopathy is bs by tossing my dose of the remedy without telling her for months and then asking her if she was still seeing a difference in my behavior, then had to explain how the placebo effect worked. I didn’t really know how to devwlop coping mechanismd until I was an adult, so my ADHD made my childhood more difficult than it needed to be.
No doctors ever told me, so when I eventually found out the root cause of ADHD symptoms when I was in my mid 20’s, dopamine getting absorbed by the brain at an increased rate so the dopamine production can’t keep up, I realized I just needed an additional source of dopamine to keep me on track. Audiobooks have been an absolute godsend in that regard for me, but other people use music or snacks. It doesn’t fix everything, but it does keep my mental health a lot more balanced, so I don’t hyperfocus or have my focus wander as extremely because I eliminate a lot of time where I don’t have enough dopamine.
I would recommend going for a diagnosis, even if it’s just so you know for sure and can look up coping strategies people are using, and potential tax benefits as well. You can always try medication as well, or even just do meds on days you need your kid to focus, and leave them unmedicated otherwise.
Diagnose and medicate - since getting through school absolutely requires it and failing school might bring with it other bad things for a kid when it comes to which people they hang out with etc.
/father of ADHD school kid
Thanks, after reading all the replies I feel getting an official diagnosis is the first step. Giving your kid all the support and tools the second and medicate the third. I’ll have to talk to my wife as she is not a fan of getting the diagnosis and giving him the ADHD label (it’s weird as she has it but only was diagnosed in her 30s).
Sometimes kids “grow out” of their ADHD in puberty, and even if not, if they feel they can handle things when they get older they can have the diagnosis removed again.
But at least here (Sweden) going through school with ADHD without medication is very difficult.
They don’t “grow” out of it. That is an outdated belief
They just “cope”, or “pass” as normal better.
https://www.medicalnewstoday.com/articles/does-adhd-go-away#can-it-go-away
Thanks, my wife is a psychologist specialized in ADHD and autism.